So I'm WAY behind with this on: Lyla had a scan two weeks ago and it was stable! Her primary spot looks stable and the lesion they found last time seems a little less noticable. Great news!
Since she has been off treatment for almost two years, she will have her port removed next week. A big step!
We went to the pulmonologist last week and he said her lungs are perfect! She hasn't been using inhalers for a while since I just didn't think she needed them. Now she can officially stop taking them. And stop using bi-pap too! She likes to sleep with it for comfort sometimes, but doesn't have to wear it unless her sats get low.
All good things!!
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